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I have never been someone who felt medically savvy. I didn’t know the language, the systems, or how to advocate inside a world of specialists and insurance battles. So when God gave me a son who seemed determined to defy the medical field—especially when it comes to “rare” diagnoses—I was thrown into a life I…
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I have never felt more useless as a father than when I got Oliver’s diagnosis. Being confronted with the reality of the possibility that I may have to bury my son was earth shattering. On top of that the dichotomy of his happy demeanor with the severity of the diagnosis didn’t line up for me. …
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From the beginning, my pregnancy with Oliver was different than with his sister. He measured so far ahead in size that they adjusted my due date, and with that Oliver was born at 33 weeks or depending on which due date you go by 36 weeks. Either way he came into the world and was…
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The RARE world of Oliver 