Welcome to Oliver’s world! My name is Bethany and this page is just a small look into our life as a rare disease family. Our family is made up of myself, my husband Kenny, my bonus son Eli, my daughter Erin, and Oliver. After his first birthday, Oliver was diagnosed with a rare genetic disease called Lowe Syndrome. He is three years old now, and while all the appointments and therapies are more familiar, everyday still comes with its challenges.
It has been a learning experience for us all, and is definitely not easy, however I wouldn’t trade my family for anything. Even through the bad days and the tears, I believe God made me mama to Oliver for a reason and I am thankful for everyday we have together.
The RARE world of Oliver 